Dubai, UAE – 29 May 2024- Dubai Health has partnered with the Angelman Syndrome Foundation to establish the GCC’s first dedicated clinic at Al Jalila Children’s Hospital. This is the first-of-its-kind clinic in the region and aims to improve care for patients with Angelman Syndrome and raise awareness of this rare neurological disorder. The clinic will provide a supportive community hub where patients, families and caregivers can connect with experts and receive the best evidence-based care, bridging a gap in healthcare for those living with this condition.
In line with Dubai Health’s Patient First promise, the partnership with the Angelman Syndrome Foundation represents new hope for individuals and families living with this rare neuro-genetic disorder. Affecting approximately one in 500,000 people worldwide, the early symptoms of Angelman Syndrome include a significant delay in obtaining developmental milestones such as walking within the first 12 months. Other clinical findings include speech delay, movement or balance disorder and often present with an apparent happy demeanor with frequent laughter and excitability.
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The clinic will provide families in the UAE access to specialist healthcare professionals and evidence-based care while also enhancing future treatment through the power of Dubai Health’s integrated academic health system. Through harnessing the education and research that takes place within Dubai Health, this partnership aims to significantly improve the lives of patients and their families.
Dr. Abdulla Al Khayat, CEO of Al Jalila Children’s Hospital, said: “We are delighted to partner with The Angelman Syndrome Foundation to bring this specialized clinic to Al Jalila Children’s Hospital, part of Dubai Health care network. This crucial partnership is a beacon of hope for patients and families affected by this rare condition. By ensuring that we deliver the highest standard of care and driven by our Patient First promise, we hope to empower Angelman Syndrome patients and their families to lead fulfilling lives.”
Also commenting on the partnership, Amanda Moore, CEO of the Angelman Syndrome Foundation, said: “We are deeply honored to join forces with Dubai Health and Al Jalila Children’s Hospital in this transformative initiative. This clinic will offer families in the UAE access to professionals with deep knowledge of Angelman Syndrome, expertise that has traditionally been challenging to locate. Raising awareness of rare conditions like Angelman Syndrome is crucial for early diagnosis and better patient outcomes.
Furthermore, This initiative is part of our LADDER Learning Network, designed to bridge critical gaps in the healthcare landscape for families dealing with this rare disorder. We look forward to working closely with the team at Dubai Health to making a significant difference to the lives of patients and their families.”
